Moving on with life after the sudden death of our medically fragile son, Tommy.
I am so, so, so saddened by Tommy's passing. I was so shocked to see this post...My heart goes out to you, your husband and Tommy's brothers. I found your blog via Aaron's Tracheostomy message boards. I keep meaning to sign on and introduce myself but I haven't been able to find the time. I have however, been following Tommy's progress. My 19 month old daughter has a trach due to dysphasia. My little one was capped the same weekend as Tommy but hasn't been very successful. So, I have been frequently checking your blog for capping and decannulation updates. Oh Renee, I am so sorry. Tommy was a beautiful boy. I am so glad that you were able to be with him when he passed. I am praying for God to hold your heart and bring you comfort and peace during this time.
Rene, I am so very sorry. I can't even begin to imagine your grief right now. You've been a trooper throughout this whole ordeal. My thoughts and prayers are with you and your family ((HUGS)). xo
Rene, I am so sorry. There just aren't words....Your family is in our prayers.
Rene, I am so saddened with the news this morning. You and your family will be kept in my thoughts and prayers!
So sorry for your loss.
I'm here from Awesome Mom's blog.I'm praying for you all during this tough time.
I am so sorry to read of your loss and I am thinking of you all during this difficult time Xxx
I haven't stopped thinking about you guys all day. My heart literally aches for you. Just now, I came on and watched some of the old videos of Tommy laughing, talking, and eating. He had so much personality, and that sweet face will be in my heart forever. No matter what, that little boy knew he was loved so much. He was blessed to have you for a mommy. Please know I'm here if you ever need to talk.Hugs & Prayers,Robin
I don't know you personally, but my deepest condolences go out to you and the rest of the family. This is one of those things that should never happen. I'll be praying for you.
Rene,I'm sooooo, so sorry. I am just beside myself. What a shock! My heart aches for you. You've been a good cyber-friend and I wish I could give you a hug in person. Even though I never met Tommy in person, he gave me joy just through the pictures, videos and your posts about him. Contact me any time. My thoughts and prayers are with you.
I offer my sympathy. Hannah
Rene,I am so very sorry to read of Tommy's passing. I found you through awsome mom's site. Thinking of you and your family. God bless.
Here from Awesome Mom's blog. My thought and prayers are with you and your family.
So sorry for your loss. My thoughts and prayers go out to you.
I stumbled on your page looking up heart procedures referenced in a book I am reading. I have been trying to figure out what to write for about a half hour, but there is nothing, there is nothing I could possibly say to take away the grief you are experiencing. I don't have any children of my own but I have taken care of many in my life. I can't imagine losing any of them and multiplying that with the fact that he was yours. When I have lost people that are close to me there are only 2 things that have ever helped me. The first is no matter how grounded in science and fact I am, I most definitely believe in an afterlife. Tommy is there running and laughing and playing like he should. He isn't tied to any machines but is free and happy and will be watching over you and your family until you all join him. The second thing that has helped me is Star Wars, I know it sounds stupid but in the Revenge of the SIth. Anikin fears the loss of Padme and he goes to Yoda, who tells him that death is a natural part of life and that you should rejoice for those who have joined the force. I know it seems weird to rejoice but in a way you can rejoice in the fact that you got to know that baby and that he was yours even if it wasn't for as long as you would have liked. My deepest condolences to you and your family.
I came over from Awesome Mom's blog too. I feel kind of like an intruder, but your family has my family's condolences and prayers.
Renee and family, I am so sorry to hear about your loss. I will keep all of you in my prayers.
My heart aches for you and your family. Tommy was so lucky to have such a loving mother and family. God bless you all. You are in our thoughts and prayers.
As we have shared similiar experiences with children with a CHD, I cannot relate to what you are going through now. You are a fearless mother, - you seem so humble in the face of adversity, relentlessly determined to find the good in the bad, and somehow seem to be unbelievably optimistic about every second in the future despite any setbacks. I think all of us that read this admire your strength, wisdom and unconditional love for your husband and children, especially little Tommy. I was only at your house for a second, but I saw Tommy, and for that brief second, I saw determination and strength in his eyes that will stay with me forever. Use your faith to rely on God, and know your beloved Tommy is in the most perfect of places. Know that he understands how unconditional your love is for him and that he will be with your family forever.
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