Wednesday, March 18, 2009

Its FINALLY Happening!!!!

I just got this email. Please help us all in memory of Tommy. Pass this on to everyone you know.

Dear members, I am very excited to inform you that The Congenital Heart Futures Act was introduced in the Senate and House of Representatives yesterday! This bill calls for increased funding for research, a national registry, and funding for a national awareness and public education campaign. C.H.I.N., along with our partners in the National Congenital Heart Coalition, need your help to get this important piece of legislation passed! Please take a moment to find out how you can help and send an email to your representatives today.

For additional information on how you can get involved and to view the text of the bill, please see: Bill You can also view the announcement and official introduction of the bill. Please feel free to pass this email along to your friends and family to ask for their support, and to post the information on your Facebook or MySpace pages!

Thank-you for your interest and assistance,


This is amazing! We all need to contact our Representatives and ask them to support this bill! Click on the "Bill" link above and you will be able to read more how to contact your Representative. There are even templates to follow. I wish this could have been done years ago, because it's too late for Tommy. But it's not too late for others! Please help pass this along to everyone. Post it on your blogs, spread it like wildfire and PLEASE send in those emails!

Below is a picture of Tommy 2 days after his second open heart surgery. With research and funding, maybe these surgeries could be a thing of the past.

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Diagram of Tommy's Heart Defects

Diagram of Tommy's Heart Defects
Double Inlet Left Ventricle with Transpostion of the Great Arteries