Sunday, April 27, 2008

Message from Tommy

We had a long night last night. Tommy had a hard time keeping his oxygen saturation levels at a level that his doctors want. We were up most of the night with alarms going off. Tommy looked and acted fine and wasn't in any danger, but we were concerned and he was checked out by ENT and cardiology this morning. He's doing much better after a nap. I am too. We both slept for quite a bit this morning.

Here's a little message from Tommy. The spot on his chest looks like it's horrible but actually it's just old blood on the steri strips and it's covered with a clear bandage. It's actually not bleeding at all, but we don't want to change it until the steri strips are ready to fall off on their own. As you can see in the video, he is not distressed at all.

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Diagram of Tommy's Heart Defects

Diagram of Tommy's Heart Defects
Double Inlet Left Ventricle with Transpostion of the Great Arteries