Wednesday, November 7, 2007

Back from vacation, back to the grind!

What a week we have had! We went to Myrtle Beach for 4 days and stayed with my MIL in an awesome timeshare. I got to sleep in a bed for the first time since July and I got to soak in a giant whirlpool tub and watch TV in my room at the same time. Now that's living! We also went to Broadway at the Beach. It's a giant boardwalk. We fed the fish, ate at Margaritaville, went to the KISS Coffeehouse, and saw a giant dragon talk trash about another dragon. Very funny!

I needed the getaway. This past Friday we saw Tommy's ENT. We were told he needs a surgery to try to stop his aspirating. It's called a cricopharyngeal myotomy. We have a 50/50 shot of it working. It's scheduled for December 14 and he will need to spend 72 hours in the hospital afterwards. If it doesn't work, we're back to square one. His doctor seemed very concerned, so that scares me.

Since we've been home, we've been approved for a Medicaid Waiver on the critical list. We have also been assigned a new nurse who will be here Tuesday. I hope she's well rested! We've also already been to the hospital for his monthly RSV shot, and to the Social Security office for his yearly review. Finally, we ended our day yesterday by going to the WIC office and getting him switched to Pediasure. He has a little bit of formula left, so I'm going to finish that out this week. With the Pediasure, he will be getting more calories with less volume. I'm sure he'll tolerate the switch well, but I'm always nervous about change.

Speaking of change, if you check out my avatar, you'll see that I had my hair cut. It was okay getting it cut, but I cannot tell you the number of times I talked myself out of it before I finally went for it! I donated my hair to Locks of Love.

1 comment:

Awesome Mom said...

I am so glad that you got a bit of a vacation! It is so refreshing to get away for a bit even if you do take the kids with you.

I hope that the surgery goes well and that the nurse works out for you.

Diagram of Tommy's Heart Defects

Diagram of Tommy's Heart Defects
Double Inlet Left Ventricle with Transpostion of the Great Arteries