Tommy's ENT (Dr. White) downsized Tommy's trach this morning. Tommy did well, so he also put a cap on Tommy's trach so that Tommy ONLY breathes out of his mouth and nose. He did so well, he was on room air and NO oxygen!
Imagine my surprise when I heard the nurse tell me that Dr. White plans to take the trach out for good Monday or Tuesday! I'm so excited, scared, giddy, HAPPY!
I will be able to move Tommy from room to room without being tied down to 10 feet of corrugated tubing. He can snuggle and take a nap with me if we feel like it. He can go outside. We can go when we want instead of planning trips around how many oxygen tanks we need. He can learn to crawl and be a typical toddler. The dreams are endless now.
We have spent the past 2 years dealing with changing trach ties every morning. Making sure he had enough oxygen, making sure he didn't get a plug in his trach, and listening to machines blowing oxygen and humidity through his trach. Our electric bill should go down now! No more being tethered down to 10 feet of that tubing 24 hours a day.
Our lives have revolved around Tommy, his trach and his machines since he came home at 3 months old. To think he will be able to move freely without a machine attached to him is bringing tears to my eyes. We are so blessed by God and for His wisdom that He bestowed on Tommy's doctors from day one. They let my baby boy live when everything was against him. Now he is thriving and getting his trach out is going to be one of the happiest days I've ever spent with him.
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Diagram of Tommy's Heart Defects
Double Inlet Left Ventricle with Transpostion of the Great Arteries
1 comment:
How exciting! I am sure he will be thrilled to be able to see more of the outside world.
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