Moving on with life after the sudden death of our medically fragile son, Tommy.
Sunday, August 3, 2008
So Frustrating!
I feel like we're doing a dance with Tommy. He's not doing as well as planned with the capping trials. I don't know if it's too much too fast for him or if he just needs practice. The nurses are telling me he desats when he wears the cap. It's so frustrating! He's on oxygen, but when he has the cap, he either has to wear a nasal cannula or just use room air. I just don't know what's going on because I can't be there with him this time. I'm so frustrated with the whole process right now.
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