Tommy failed his swallow study today. We have proof he is aspirating on xray now. It stinks, but there isn't much I can do about it.
I'm so tired tonight. I might actually be asleep before my usual 2 a.m. Time to refill Tommy's feeding pump, put on a new nebulizer bottle on his humidifier, and set my alarm clock so I can get up and spot clean the living room so he can have occupational therapy tomorrow.
Life stinks financially right now. I am doing everything in my power not to call my mother in law for a loan, but every day that goes by seems to look more and more like I am going to have to call soon. I don't know how we will ever pay her back. I guess a lot of things stink around here today.
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Diagram of Tommy's Heart Defects
Double Inlet Left Ventricle with Transpostion of the Great Arteries
2 comments:
That is a big bummer! Will he ever be able to eat orally?
I'm sorry that Tommy failed the swallow study. Every set-back is hard. Being strapped financially is hard too. I'm praying for you and your family and hope that things improve for you all soon.
(((hugs)))
Nancy
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